I think we are getting better. Jameson's cough is MUCH better and he does not have a stuff nose anymore. We are so thankful this cold did not take us to the hospital. I am also very thankful for our pediatrician. Dr. Coffman was off on Wed. and he personally called to get us in the office with the exact doctor that he wanted us to see. He is so over cautious with Jameson and that makes me happy. He will see us for any reason.....even if I am just being paranoid! Dr. Coffman asked if I was as up tight with the other boys as I am with Jameson. I said NO!!!!! The other boys have healthy skin and Jameson doesn't. I told him I have every reason in the world to be paranoid....he laughed and agreed.
Halloween was fun. It was not cool enough to take Jameson with us; plus, he was sitll getting over his cold. He stayed at home with my mom and dad. The boys did go as mummies. They had a great time. Todd and I had to bandage them....WOW...what a job. I think they have a greater appreciation for what Jameson has to go through everyday. It took forever to wrap them. Oh!! Just for those who may want to wrap their kids as mummies next year remember they may need to go to the bathroom. We had to learn the hard way.....unwrap and then wrap again.
I was talking to another Eb mom and she gave us some great advice. Other mom's of Eb babies really are soooo helpful. I have such a fear doing anything different with Jameson. I want to wrap him the same, hold him the same, and really not change anything but his diaper. This wonderful mom told me that doing things different is good. She told us it is sorta like a risk-reward thing. If you don't take the risk to do something different then you will never know if something else may work better. Well.....I did not wrap Jameson's arms on Friday. I put this other clothe-like material on him. He did still blister but not anything like I thought he might. I was just proud that I did something different. On Saturday, I did wrap his arms like normal but I believe that I am learning to trust and not fear the unknown. I was praying today and expressing my anxieties with Jesus. I was encouraged by the peace that I felt. The Lord made it clear to me that I needed to find joy in the little triumphs right now. I need to find Jesus in even the little things (like wrapping him differently). I am always asking Jesus for the BIG answers to pray....when really Jesus is all over answering the little things and I just needed a little reminder. I will find joy in the little triumphs in life!!!!
Thanks for praying for Jameson. I do believe your prayers kept us out of the hospital. We are thankful for each one of you!!!!