Hi guys. Please pray specifically for Jameson's breathing. He continues to fight for breath at times and we are giving him more breathing treatments than recommended. The Dr.'s say one every four hours and there are times that we have to give two or three in a four hour time period.
Also, please pray for his skin. This past week his skin was really bad. We're aren't sure why exactly but think it may be a result of the steroids.
It's still a wild roller coaster ride of ups and downs...we rest easy though because we know Who is in control of it all.
Thank you.
Help! This dogs getting me.
12 comments:
Hey Setsma's,
We will be praying for Jameson's breathing and his skin. I will let the church know.. I gave out the bracelets at church and everyone wears them proudly. I'm glad we serve AN AWESOME GOD, and he will bring you guys through this and has BIG plans for Jameson.. We will continue to pray for the entire family and I've asked the church to pray for Uncle OD and Aunt Faye. I know they are a blessing to you and I am greatful they are able to be there to help. We Love You All,
Susan, Aunt Carolyn, Bonnie,
Sandra,Hannah,James, and Michael
I just prayed for sweet J and I can't wait to see him this week! "And since we have such a great High Priest who rules over God's people, let us go right into the presence of God, with hearts fully trusting Him. . . Without wavering, let us hold tightly to the hope we say we have, for GOD CAN BE TRUSTED to keep His promise!" Hebrews 10:21 & 23 Love you guys, Tanya
Someone much wiser than me reminded me this week, "He is before all things, and in Him all things hold together." Col 1:17
I know that He has already walked the path ahead of you and as you walk it just know, He is holding you together and lighting your way.
We will be praying,
Stacey
We will definitely keep Jameson and his breathing in our prayers. As far as the skin break down, I had a couple other parents tell me one time that they tend to see more breakdown when their kids are having a growth spurt. As hard as breakdowns are to handle, this made me feel a bit better because it meant that Ella was growing. Just something to keep in mind.
Katie, mom to Ella, RDEB
This is Mrs. Debbie (formerly of CEC and FBC/O) and Mr. Steve (worked preschool desk also). Helen Stowell told us about Jameson and we just wanted you to assure you of our prayers for your precious son.
We are living in SC now and I have had a reoccurence of cancer since moving back home. God is good and I am doing well.
We will check this blog daily for updates on Jameson and how we can pray specifically for him. Love, Mrs. Debbie
I am so sorry it has been such a rough week for you all and Jameson. My new favorite quote is from the Papa Prayer and it is, "Right now, from heaven's throne, our Papa is watching over us, loving us, arranging everything for our good." Your heavenly father loves you more than you could imagine and is eager to do you good.
I can't wait until the day that you can visually see all the good He has performed for you through this valley. I am so sorry you are having to travel through it. Please know that you are not alone and that you are covered in prayer.
With much love,
Kathleen
Setsma Family,
You guys are an inspiration to all
of us. I can't tell you how many people we have come across that consider it a privilege to pray for that "precious little boy". You have made it clear that we serve a sovereign God who never fails us. You have glorified God in such a mighty way! We will continue to pray for your family
as well as little JT.
Love you guys,
Matt and Lisa
We live north of dallas about 30 minutes, in McKinney. Would you send your address, I wanted to send Melisa a note.
Hello, My name is Shannon you and your precious family were brought to my attention by Sara Denslaw. I wanted to say that you and yours are in our thoughts and prayers. I certainly hope that they can get his breathing issues under control and soon. My son Dillon also has a form of EB, Eczema and Asthma as well. Hang in there your all doing a wonderful job! Keep the faith.
The Evans Family
Hey Setsma Family,
Thinking about you guys tonight. I trust that the breathing is going better. I can't begin to imagine the strain this places on a family. I think of your other sweet boys and pray for them too.
Love keeping up with you gusy through your blog, thank you for being so faithful in keeping it up with so many other things to try and keep up with.
Love to you. Praying for you always..
Karen
We are a former TFA family, and my daughter Marykate played soccer with Graycn and was in her class. We were reading her update tonight when she mention how Jameson was doing. We have added him and your family to our prayer list at home and at church. We pray that JESUS holds Jameson in his arms and heals him. We believe that all things are possible with our Lord and Savior. Praise our God for he and only he is Great. Peace be with your entire family.
The Karbergs
Hi Setsma's ... just wanted you to know we praying for your little guy and family.
Love, Kim Zeitter (ofield) and family
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