What a day. When we arrived at Dr. Connelly's office she took one look at Jameson (and the fear in our eyes) and admitted us into the NICU at Jackson Memorial Hospital. She and her entire staff are awesome. She wanted to monitor Jameson for a couple days and make sure Melisa and I were totally comfortable with wound care before we went back to Orlando.
Wound care was really hard on Jameson today. He screamed for a couple hours. We know tomorrow will be much better. Being the optimist that we are...we did learn some good information on cleaning his little bottom (the rawest part of his body). If we can learn one good tip or trick a day we will be way ahead of the curve.
One of the leading EB specialist's in the country will be meeting with us Tuesday. To my knowledge he is the first Doctor to perform skin graph to an EB patient.
We will keep you updated as things unfold. We are so grateful and humbled by all of your prayers and support.
Todd and Melisa