On July 13th at 10:39, we had a beautiful baby boy named Jameson Todd Setsma. He was greeted with excitement and joy. He has just a little hair and round cheeks. (The cutest little guy ever) He weighed 6 lbs. and 13 oz. ,and was 19 inches long.
Soon after his birth, we were told that Jameson had a rare skin disease called epidermolysis bullosa. This is a genetic condition that affects 1 and 50,000 children. We were in total shock and completely blind sided by the diagnosis. I still think, that we will wake up and this will all be a very bad dream. Well, it is not a dream it is our life. This definitely caught us off guard but it did not surprise our Lord and Savior.
There have been many ups and downs throughout this week. The "ups" are the love that our friends and family have shown to us during this most difficult time. The "downs" are many....too many to speak of but never more than we can handle. Jesus has held our hand and bottled our many tears. His presence has been felt and his grace is enough to get us through second by second. We do not understand any of this, and we have asked why us..... His answer has been to glorify HIS name.
We ask that you pray for Jameson's health while in the hospital (keep him safe from germs and infection), Jameson's pain to be minimal, nurses to come to know Jesus (as we always sing Jesus loves me to him while his dressing are being changed), wisdom in finding a specialist, and that Nicholas and Zachary do not feel the burden that we are carrying.
James 1:3-5 "Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything. If any of you lacks wisdom, he should ask God, who gives generously to all without finding fault, and it will be given to him".
We will update again real soon.
We love you,
Todd and Melisa