What a difference a day makes. Yesterday we were totally discouraged and today we are totally encouraged. This EB parenting things is exhausting!!! A mental and emotional roller coaster.
Marcela Grubman P.A. and Dr. Connelly called 2 mother's of EB babies that live in the area and asked them to spend some time with us. Sally and Lisbey, the mother's, are AWESOME! They spent 5 hours with us in the NICU teaching us how to properly bandage Jameson. The information and time they spent with us is worth more than money or gold. We laughed a lot and we really needed that. The families with EB children are a close knit group. Sally and Lisbey knew all about us before they arrived and that's so comforting because we know that all the EB families already care so much for Jameson and our family.
Jameson was discharged this evening and we will be heading home Wednesday morning. Since our room was already paid for tonight and since it was in the middle of rush hour (Miami is like NY City to us) we decided to spend the night here.
Thank you so much for all your comments. We read them all and enjoy each and every one.
Todd and Melisa