What a difference a day makes. Yesterday we were totally discouraged and today we are totally encouraged. This EB parenting things is exhausting!!! A mental and emotional roller coaster.
Marcela Grubman P.A. and Dr. Connelly called 2 mother's of EB babies that live in the area and asked them to spend some time with us. Sally and Lisbey, the mother's, are AWESOME! They spent 5 hours with us in the NICU teaching us how to properly bandage Jameson. The information and time they spent with us is worth more than money or gold. We laughed a lot and we really needed that. The families with EB children are a close knit group. Sally and Lisbey knew all about us before they arrived and that's so comforting because we know that all the EB families already care so much for Jameson and our family.
Jameson was discharged this evening and we will be heading home Wednesday morning. Since our room was already paid for tonight and since it was in the middle of rush hour (Miami is like NY City to us) we decided to spend the night here.
Thank you so much for all your comments. We read them all and enjoy each and every one.
Todd and Melisa
Help! This dogs getting me.
15 comments:
Praise God! We prayed today would be completely different. We are in constant prayer for you guys. We are here to walk with you through this every day. We love and miss you guys greatly. Hope to see you soon.
Mike and Lori
What great news. It was a thrill speaking with you both last night just to hear the encouragement in your voice. Glad to hear that the boys are staying strong. Love you all so much.
Mark and Tania
Melissa and Todd,
I want you to know that Jameson is in our prayers and we have added him to our prayer list at church. Remember God is good and He can heal. You and your family have a strong faith.
Uncle Les and Kay
That is awesome! God is so good. We've been praying for you every day. There may be distance between us in mileage but we are right on top of you with our prayers! By the way, this blog is fabulous and we want to thank your family for setting it up! And, your newest baby boy sure is a handsome addition to the Setsma family! What a looker!
Much love,
Brett, Candice & Cooper
Sweet Setsma Family,
We have been gone all summer with youth activities and just heard yesterday about your precious baby. Keith, Alex and I are praying for the five of you everyday! God is intimately aware of what you are going through. We are praying God will give you comfort, continued strength, and we are praying and believing God will place His healing hands on Jameson. We love you guys!
The Harmon Family
"Every experience God gives us
every person He puts in our lives,
is the perfect preparation
for the future that only He can see."
-Corrie Ten Boom
Such a thrill to read your latest update!! We are excited you're able to head home today and will continue our prayers for Jameson's healing, along with strength, peace and rest for you and Melisa. We love you very much!
Kevin & Jamie
We continue to pray without ceasing for your entire family. JT is adorable and we can't believe how big the boys are. We are so thankful for the wisdom God has given the different doctors and how He has brought special people into your lives who truly can know you hearts because God has prepared them ahead of time. We love you.Glen and Debbie
WooHoo! What a praise that God sent some sweet relief to y'all in the form of new friends who can truly understand all you're going through! We look forward to and will be praying for your safe, uneventful return home. Please call if there is anything we can do once you get home - we're up for and open to anything! We love all five of you so very much and pray for you daily. "When you don't understand, keep trusting His hand"-
Love y'all - Shannon & Doug
sometimes you just don't know how to say thank you to god. he is so powerful in the middle of a storm, todd and melissa,you guys are constantly in our prays. proverbs 4;20-22 my son,give attention to my words;incline your ear to my saying. do not let them depart from your eyes; keep them in the midst of your heart; for they are life to those who find them, and health to all their flesh. your south carolina prayer partners, praise be to god. bonnie and charles
What great news!!! Praying for you guys a lot! Specifically Colossians 1:11 "being strengthened with all power according to his glorious might so that you may have great endurance and patience"
You are definitely a blessed family! God is so so good!
So glad you will all be home together, finally! We are praying for you everyday! We love you so much!
Matt and Kathleen
Praise the Lord!!! How wonderful to have such an awesome support group of other moms and dads who can totally relate to what you are going thru and feeling. I sure wish we had had that when we were discovering about Ethan's stroke. God is good and He will walk with you during this time. How wonderful it will be for your family as you see His mighty work revealed especially thru Jameson. He has BIG plans for that boy!
All our love,
Preston, Tiffanie, Ethan and Ashton
Hi Melissa & Todd:)
I want you both to know that me, my family and friends are all praying for ya'll. I'm so happy that your family is finally at home! We will be continually praying and thinking of all of you and sending many positive and uplifting thoughts your way. I came accross this prayer:
"Lord, thank you for my children. I know the days ahead will not always be easy, but there will also be laughter and good times. I know you will be with us, and I pray you will share your strength and wisdom with us through all the ups and downs. Amen"
I pray each day will be uplifting for all of you. And that ya'll will gather peace in knowing how many are praying and thinking of your family:)
God Bless,
Misty Green (friend of Mark's)
I am so thankful for Jameson's progress and will continue to pray for all of you. I cannot tell you the emotions I had when I saw the picture of you hugging your older son good bye, and read about his prayer. I know that this puts a strain on your other children too, and they are so precious to "rally around" yall and Jameson. I will keep them in my prayers.
Linda Cannon, €Florence, SC
My name is Caleb Meade. My mom sent me this story in an email to pray. As of now i am in iraq with USMC. i just want you to know that baby has the most beautiful smile in the world, and he brought a tear to my eye. God Bless
DOC MEADE
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