March 13, 2009

What a week Melisa and I have had together. Time to cry, laugh, question, rest, and time to spend quality time together. One of our friends that we know through the kids baseball said the other day that they had never seen us together. Since Jameson couldn't leave the house only one of would be at Nicholas' game at a time. Well, this week we weren't apart and we loved and cherished every minute of it.

This week we found a wonderful plot under some big pine trees at the Winter Garden Cemetery. Melisa and I buried Jameson's earthly body this morning. We didn't think it would be so hard, but we had a good cry.

We want each of you to know that all your prayers for our family are being answered. God has given us amazing peace and understanding this week. We spoke to a wonderful psychologist named David Thomas and he was so encouraging. He really likes how we have handled this journey with Nicholas and Zachary. We have been so concerned for the boys, not wanting them to struggle now or years from now with underlying anger, pain, doubt, etc... David gave us some great exercises for the boys and we are pleased to announce they are handling the death of their brother better than we could of ever imagined. Again, God is answering your prayers for Nicholas and Zachary.

Please continue to pray for us. We have not done anything in the house with Jameson's bandages, crib, room or toys. We just want to take our time and ease into it as we are lead too. I will be heading back to work next week and I'm sure Melisa will have some harder days all alone in the house. Even now we don't like going in certain rooms and we have been avoiding those areas (bandage room!).

We told you we would get you the address for donations. It is:

Arnold Palmer Medical Center Foundation
3160 Southgate Commerce Blvd Suite 50
Orlando, FL. 32806

Please note that it's in Jameson's name so they will direct it accordingly. Their is one little RDEB boy that we would love to help.

If you feel comfortable you can make the check's out to us and will direct them to the EB families around the country that really need financial help. We know of many families that have an EB child and they either can't afford bandages at all or have such a limited supply that they have to wash them out and attempt to re-use them. We can't image!!! Please know that our hearts desire is to help as many families as we can.

We will continue to update the blog and share of the God's mercies that are new everyday.

Love,

Todd

March 4, 2009

Just wanted to give a quick update. Melisa and I are doing well. We can't wait to see you all on Friday.

A lot of people have been asking us what they can do. Melisa and I have a heart to help other babies that have the same condition that Jameson had -epidermilysis bullosa, EB . We ask that in lieu of flowers that donations be made. We don't have all the information from Winnie and Arnold Palmer Hospitals yet but I will get it up on the blog as soon as possible.

Please pray for our family specifically during the night and morning. It's so hard at bedtime and when we wake up in the morning.

Thank you all for your support.

Todd

March 3rd, 2009. Celebration Day

This morning at 6:08 Jameson went home to be with Jesus. He's now got a perfect body without EB and without breathing problems. He's running around playing with Jesus. I told Melisa that Jesus is probably rubbing his skin all over the place and no blisters!!!

The past 24 hours have been really hard, as you can imagine. At noon yesterday a MRI was done on Jameson's brain. It came back showing that severe damage had been done to all parts of his brain as a result of him coding for 17 minutes. The ER doctors kept him alive through chest compressions. I'm not a fan of CPR anymore...just kidding of course (the good of CPR far outweighs the bad). At 7:30 last night Jameson's breathing tube was taken out and the strong little guy comfortably breathed on his own for about 10 hours before he went home to receive his new, perfect body.

We thank each and everyone of you for your unfailing love and prayers for us. We know that God has answered all your prayers for Jameson. We feel a peace that passes all understanding.

Our memorial service is set for this Friday at First Baptist of Orlando's Henry Chapel at 11 a.m.

Thank you.

Todd and Melisa

Mar 1, 2009

Where do I begin.....the last 2 days have been an emotional roller coaster for Todd and me. Jameson is still on the ventilator. His swelling has gone down and now it is a balancing game of trying to keep all of his fluids normal. The doctors and nurses are really getting a full days work with our baby. He is just a little high maintenance =). Needless to say, we have really connected with all of our nurses and they have become our friends. The doctors are concerned about brain trauma and at 4 or 5 on Monday morning he will have a MRI of his brain. This will answer a lot of our questions. Someone prayed today that none of this has surprised God and that He has gone before us and has prepared us for the results. We know that fear does not come from Him....so please pray that we will not be fearful of the results of the MRI. God WILL only give us His best and there is a comfort in knowing this is God's will for our lives.

I was once asked a very hard question....and the question was this. If God did not do one more thing for me or if He did not answer one more prayer...Has God done enough? I was torn. But ultimately my answer was yes. God does NOT need to answer one more prayer or do one more thing for me....He has done it ALL when He gave me His only Son.....Jesus Christ!!! That was enough.

Thanks for your prayers.

Love,
Melisa