What a week Melisa and I have had together. Time to cry, laugh, question, rest, and time to spend quality time together. One of our friends that we know through the kids baseball said the other day that they had never seen us together. Since Jameson couldn't leave the house only one of would be at Nicholas' game at a time. Well, this week we weren't apart and we loved and cherished every minute of it.
This week we found a wonderful plot under some big pine trees at the Winter Garden Cemetery. Melisa and I buried Jameson's earthly body this morning. We didn't think it would be so hard, but we had a good cry.
We want each of you to know that all your prayers for our family are being answered. God has given us amazing peace and understanding this week. We spoke to a wonderful psychologist named David Thomas and he was so encouraging. He really likes how we have handled this journey with Nicholas and Zachary. We have been so concerned for the boys, not wanting them to struggle now or years from now with underlying anger, pain, doubt, etc... David gave us some great exercises for the boys and we are pleased to announce they are handling the death of their brother better than we could of ever imagined. Again, God is answering your prayers for Nicholas and Zachary.
Please continue to pray for us. We have not done anything in the house with Jameson's bandages, crib, room or toys. We just want to take our time and ease into it as we are lead too. I will be heading back to work next week and I'm sure Melisa will have some harder days all alone in the house. Even now we don't like going in certain rooms and we have been avoiding those areas (bandage room!).
We told you we would get you the address for donations. It is:
Arnold Palmer Medical Center Foundation
3160 Southgate Commerce Blvd Suite 50
Orlando, FL. 32806
Please note that it's in Jameson's name so they will direct it accordingly. Their is one little RDEB boy that we would love to help.
If you feel comfortable you can make the check's out to us and will direct them to the EB families around the country that really need financial help. We know of many families that have an EB child and they either can't afford bandages at all or have such a limited supply that they have to wash them out and attempt to re-use them. We can't image!!! Please know that our hearts desire is to help as many families as we can.
We will continue to update the blog and share of the God's mercies that are new everyday.