What a week Melisa and I have had together. Time to cry, laugh, question, rest, and time to spend quality time together. One of our friends that we know through the kids baseball said the other day that they had never seen us together. Since Jameson couldn't leave the house only one of would be at Nicholas' game at a time. Well, this week we weren't apart and we loved and cherished every minute of it.
This week we found a wonderful plot under some big pine trees at the Winter Garden Cemetery. Melisa and I buried Jameson's earthly body this morning. We didn't think it would be so hard, but we had a good cry.
We want each of you to know that all your prayers for our family are being answered. God has given us amazing peace and understanding this week. We spoke to a wonderful psychologist named David Thomas and he was so encouraging. He really likes how we have handled this journey with Nicholas and Zachary. We have been so concerned for the boys, not wanting them to struggle now or years from now with underlying anger, pain, doubt, etc... David gave us some great exercises for the boys and we are pleased to announce they are handling the death of their brother better than we could of ever imagined. Again, God is answering your prayers for Nicholas and Zachary.
Please continue to pray for us. We have not done anything in the house with Jameson's bandages, crib, room or toys. We just want to take our time and ease into it as we are lead too. I will be heading back to work next week and I'm sure Melisa will have some harder days all alone in the house. Even now we don't like going in certain rooms and we have been avoiding those areas (bandage room!).
We told you we would get you the address for donations. It is:
Arnold Palmer Medical Center Foundation
3160 Southgate Commerce Blvd Suite 50
Orlando, FL. 32806
Please note that it's in Jameson's name so they will direct it accordingly. Their is one little RDEB boy that we would love to help.
If you feel comfortable you can make the check's out to us and will direct them to the EB families around the country that really need financial help. We know of many families that have an EB child and they either can't afford bandages at all or have such a limited supply that they have to wash them out and attempt to re-use them. We can't image!!! Please know that our hearts desire is to help as many families as we can.
We will continue to update the blog and share of the God's mercies that are new everyday.
Love,
Todd
Help! This dogs getting me.
13 comments:
Melisa and Todd,
Thank you for sharing your week with us. I have thought about your often. Please let me know if there is anything I can do even if you just need to talk. Or if you need help packing up his bandages when you are ready. What ever you need.
Praying that this up coming week is ok as it can be.
~Sara
Hey bro, I love you.
Scott
Melisa & Todd-
It's great to see an update from you guys. I've been praying for your family every day. A silent prayer here and there that peace be with you all.
Melisa I am sure you have tons of support on your side of the world but do add me to your list if you need someone to talk to...just in case my email is simba9960@yahoo.com
Praying in Miami for all of you,
Sally
It is so good to hear from you guys on this site!! I have been thinking about you and praying for you often! You guys are absolutely amazing and I am so happy for you to be able to cope with this difficult time by being together. I am blessed to have met you and your family (I wish it would have been under different circumstances)! You, your family, and baby Jameson will have a positive impact on my life and the care I provide to other patients I encounter! You will continue to be in my thoughts and prayers!
Love, Jessica
Hi Todd and Melisa,
Thanks for taking the time to share what has been going on. We are praying everyday!! Glad the boys are handling this with God's help. We keep praying that you, the boys, and grandparents will have a peace that passes all understanding! it's wonderful that you want to help others!!
Know you are prayed for in North Carolina,
Jennifer Turner
I have been checking the site daily. It was so good to read an update and to know that God is supplying your needs. I have been praying for you guys and will continue. We love you!!!
Chuck and Tammy
Dear Melisa and Todd,
We continue to pray for you and the boys and the grandparents.We talked to Mr.OD this morning and he shared his hurting heart with us.Little Jameson has made a huge impact in many people lives as well as you and Todd.You have truly shown Gods grace is sufficient.We can't begin to know all the different feelings you are experiencing but we know One that can.Melisa may God be right beside you this week as you enter every room where special memories are so vivid of Jameson.Todd we pray you will have the peace that passes all understanding as you start back to work.Thank you for sharing everything with all of us.You are an encouragemnet to all who have read about Jamesons life.We love you.
Glen and Debbie
Todd,
I am so sorry for your loss. JT is an amazing boy. My thoughts and prayers go out to you and your family. You have an incredibly strong family and are truely inspiring...
Mike(Mizuno)
Todd and Melissa,
We continue to pray for your family. I love to see your boys at school and the smiles they carry. Your amazing love for Christ continues to show through each step you make.
Lori Dowling
My dearest friends,
this is the third time I try to find the right words for what had happend. We went to Portugal for 2 weeks vacation and came back a few days ago. After I found the time I went to the pc to read what`s new with you. First I saw those pretty pictures of Jameson ( with Mel`s big eys ), you and our so loved florida boys. I thought to myself, they are all so good looking (??) and happy. The boys are so cute and Melisa your smile is so really full of love. When I start reading from the bottom of the blog I usually have to translate all those medical/technical terms. What realy happend came thrue, after a great while and a second read.
My heart is so so sad and it hurts. The thing, that is hurting MOST is that you have to handle all that. The rollercoaster of emotions. Like Todd said...I had a good cry, too. Dirk and I had a long talk about all that ( still trying to get pregnant ). We came to the conclusion, that you both have the great believe in good and with that, your family and all of those friends you have had and made you are in good hands. I would love to say, what ever you need, let me know- we will be there. I would love to bring you some chocolat or let Dirk cook you a german meal- for bringing a little smile on you face...but 10 000 miles away...
You are always and ever in our prays. We love you
Big hugh ( can I say that??)
from the freezing, frosty place..
Dirk, Mia&Steff
P.S: Sorry for not writing more, need the help of katy. I`ll write a letter.
I continue to pray for your family. I think of ya'll often. The honesty of your words in your blog have left an impression on me. Again, I'm thankful for your willingness to share this part of you life.
Melisa and Todd...how are you? We miss hearing from you, and miss your strength.
Melisa and Todd...how are you? We miss hearing from you, and miss your strength. You have lead us in the past year; thank you.
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