Help! This dogs getting me.

Help! This dogs getting me.

Wednesday, March 4, 2009

March 4, 2009

Just wanted to give a quick update. Melisa and I are doing well. We can't wait to see you all on Friday.

A lot of people have been asking us what they can do. Melisa and I have a heart to help other babies that have the same condition that Jameson had -epidermilysis bullosa, EB . We ask that in lieu of flowers that donations be made. We don't have all the information from Winnie and Arnold Palmer Hospitals yet but I will get it up on the blog as soon as possible.

Please pray for our family specifically during the night and morning. It's so hard at bedtime and when we wake up in the morning.

Thank you all for your support.

Todd

25 comments:

jennifer said...

Dear Todd and Melisa, we will be praying for those mornings and nights. Please let us know more about the donation as we want to help you keep making a difference. My heart is breaking for you both and I know the Lord is with you! Jameson and you both have made a difference in our life as you continue to live for Christ through the trials! When I read your blog I see Jesus through you. your beautiful baby is with Him forever! Love you all, Jennifer Turner

The Spencers said...

Todd and Melisa,
Our hearts, thoughts, and prayers go out to you and your family. God is smiling down on you both for being such a positive inspiration, during such a traumatic and heart felt loss. I am honored to be your friend. My wife and I have both been encouraged and blessed by reading your blog and feel that Jameson in his short time here has entered our hearts - we know that he is now in our Father's arms free of pain and full of joy... may you feel our Lord's comforting arms wrapped tightly around you... Michael & Christina Spencer

Hilda said...

Good Morning Todd & Melissa,
It's morning and you have been prayed for. Love you,
Hilda

Simba9960 said...

Todd and Melisa~

Know that I've said a prayer in your family's name just now...that he provides you w/the strength you need to get through each day.

Lots of hugs coming your way
~Sally Contreras

aself2 said...

Todd and Milisa,
We at eagle dunes were so sorry to hear about your loss. Our prayers go out to you and your family. Although I have not spoken to you lately I have often thought of you and Jamison. God bless you and your family...Allen Self and staff

Emily said...

We are praying for all of you constantly. May Jesus continue to hold you and love you through this storm.

-emily and david johnson

Angela said...

Todd and Melisa-

I am not sure what to say. I sit here crying as I think about what you have lost. Jameson was a beautiful little boy. I also think about what you have gained, and how much everyone around you has seen God's love through him and in you both. My thoughts and prayers will be with you in this difficult time.
Angela, WPH.

Pam, Ed, and Jesse said...

Todd and Melissa,
We have been praying for you everyday, that God gives you the strengh and peace that goes beyond our understanding. Even though we just met you, we see that peace of the Lord in you both, and I praise God for His love that He shows through you and Melissa. In the midst of this , we know that our God is Awesome,His love is amazing and He has little Jameson laughing, playing and feeling His almighty love & just knowing that, I pray, through all the tears, may the joy of the Lord be with you all, more than we can even imagine.
Blessings
Pam, Ed, Jesse Chairvolotti

Pennie said...

Dear Todd and Melisa,
Although I didn't get to meet you at Have a Heart for EB in Feb. I feel I know you through Sara D. All of us here at Debra send you our thoughts and condolences. I will never forget the first time I went to you site and saw the beautiful photo of Jameson.You must have many family and friends because you seem like amazing people.
Pennie Cannon

Heb said...

Tood and Melisa
We will be praying for you and your family. Your faith is just a testimony to me especially during all of your trials. My husband and I will pray for healing and one day we will all meet together with Jesus! It will be amazing!
Please know that people in Madison, MS are praying for you.

Heather Reichard Jenkins

Debbie Rector said...

Dear Todd and Melisa,
We are praying for you and your entire family during this difficult time.I wanted to share a verse with you from one of our dear friends who lost her husband to cancer a year ago and has 4 children."I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living." Ps. 27:13
We love you Glen and Debbie

Lisa DesJardins said...

Dear Precious Family,

There are no words to say right now that come close to touching the pain you must feel. I only know that our great Savior and Lord is so pleased with you for your faith and endurance during this hard time. He is now holding Jameson in His arms and He is also holding you. I have been so blessed by your faith as you have walked this dreaded road. It is amazing how God uses tragedies to reveal himself, but He has. You have been a picture of God's grace and mercy... one I am personally blessed to have seen. We will continue to pray for your family as we have been... especially in the morning and evening... that God would shower His unfathonable peace on each of you.
Jesus said'"Don't be troubled. You trust God, now trust in me. There are many rooms in my Father's home, and I am going to prepare a place for you. If this were not so, I would tell you plainly." John 14: 1-2
We're all counting on it! One day we will see Jameson and Jesus... face-to-face! May you always remember: " We've been given a glimpse of the real thing, our true home, our resurrrestion bodies! The Spirit of God whets our appetite by giving us a taste of what's ahead. He puts a little of heaven in our hearts so that we'll never settle for less." II Corinthians 5:5
May God be with you and know our prayers are too.
His love to you all, Don and Lisa DesJardins and Jackson Hodor

Dianne Snead said...

Dear Setsma Family,
My heart aches for the pain you must feel. We are praying for you all. I so wish I could be there tomorrow for the service. I am so sorry I can't. You all are constantly in my thoughts and prayers. We love you all. Dianne

Jeff said...

Know that through your struggle and pain, others may have a chance to live because of what you're doing. May God Bless you in your time of pain and sadness. We'll continue to pray for you through the weeks to come.

Jimbo and Suz said...

Dearest of friends,
You will be in our thoughts and prayers as you celebrate Jameson's life today. It's so neat to see the enternal impact Jameson and your family has had on so many people. It was confirmed again by reading the most recent posts.

We love you and pray for you daily. Thank you for showing us all who Jesus is and the joy we can have in Christ. May God give you strength to make it through each day.

In His Grip,
Jim, Susan, Justin, Leah, Chase and Jocelyn.

Lori Martini said...

Dear Todd, Melisa, Nicholas, Zachary & Family-
I am so very, very sorry for your loss. I feel these words just don't come even close to expressing what I want to say.
I have come to know about Jameson, and your family, through a friend of Cheryl's and have been following the blog updates on Jameson.
Even though we have never met, I have been quite moved by Jameson and the strength of your family.
I too have had a baby die and know some of what you are going through right now. It is the hardest road I have ever traveled, but I have found my way to a peaceful place in life. It is not easy, to say the least, but please know that it is possible.
If you are reading this before today's celebration I would love to share with you a beautiful song that I heard that can be played at a memorial service for a baby that has passed. If you are interested I can forward it to you via email. I am at work currently and this is my contact information: lori.martini@guidedogs.org or
(813)810-6201
I do hope very much that you and your family will find some comfort in the days to come. Peace be with you and your whole family.
You are forever parents to Jameson. The love will remain and grow stronger each and every day.
With Love,
Lori Martini

LONNI MOORELAND said...

Todd and Melissa,

You don't know me, I found out about you from Sara Denslaw. My little 9 month old passed away last June, she had RDEB. My heart aches for you, but I am also so glad you have HOPE. Please know you are in our prayers, there will be many dark nights, because of your hope the days will bring light and peace. I love the pictures on your blog of your sweet little boy. His eyes have such light in them and his smile is just sweet. Thank you for sharing your story!
Love
Lonni Mooreland
lmooreland@yahoo.com

Circleoftrust said...

you know we are praying-peter and carolyn

Charity said...

Hi Setsma Family,

Please know that your family is being prayed for by people who you don't even know. May our amazing God wrap his arms around your family. I'm a friend of a friend and we will be praying for y'all! Your blog has made a difference in my life.

CJH

Amy said...

Melisa and Todd,
I continue to pray for your family. I think of you every day. I pray that you're finding God's comfort and peace.

qoet said...

We'd like to donate to EB research and for a cure...we've also done some resarching on organizations, but if we we can support Winnie Palmer Hospital, even better! We'll keep watching your site for requests and of course - you are always in our prayers.

setsma said...

Just want you to know that you remain in our hearts, thoughts, and prayers. We love you!

Aunt Lynn

Sara said...

Just letting you know we are still thinking of you. Please let me know if there is anything I can help with.

Jane said...

Todd and Melisa,
Return to your site often to read and reread. So much to be learned by all of us thru your transparent postings of your journey. Such an amazing story of God's amazing grace, Jameson's brief yet very purposeful life, and his perfect healing. Feeling led to pray especially for strength for you to guide dear Zachary and Nicholas thru their grief while you must also continue to journey thru your own.
Much love,
Jane Slusher

lisbey (eb mom) said...

i am so sorry for your loss my thoughts have been with you all since the day we mett even though i haven't left a message.our love, thoughts and prayers are with you we are praying for you and your fam day and night .may the joy of lord be with you all.

lisbey martinez ( eb mom ) mom of ashley leon...