We are soooo amazed and thankful for the many words of encouragment everyone has sent our way. These last 14 days have been very hard, but the support and prayers from you all have carried us to a place of peace that only comes from Jesus. We love you all and cannot wait to tell you about our trip to Miami. Please pray that Jameson will travel well and that we will have a great time of bonding with him away from the hospital.
Zachary, our 5 year old, prayed tonight in a way that blew us away. His sweet prayer was beyond his years and understanding. God is doing great things all around us. Thank you Lord .
Love,
Melisa and Todd
Zachary, our 5 year old, prayed tonight in a way that blew us away. His sweet prayer was beyond his years and understanding. God is doing great things all around us. Thank you Lord .
Love,
Melisa and Todd
16 comments:
I am so excited to see what the next couple of days hold for Jameson. Thank you both for allowing the boys to hang with us for the last week or so. They are great kids. You are great parents. Jameson is a blessed kid to have you both to go through this with.
Love- Mark
My name is Joe Murray, and my 13-month old little gal, Joella, has EB. My wife, Katie, has communicated to me what has transpired with Jameson since his birth. We have been praying daily for God's comfort and grace to shower you with friendship, wisdom, patience, and stamina in these first months of caring for a child with EB. From viewing your posts and the many sincere comments, it appears He is wrapping His warm arms around you as His children.
July 25th was the one-year anniversary of our taking Joella home from the NICU, where she spent her first 34 days of life. Oh, what a joy it was to bring her home. Reading your post describing Jameson's departure from the NICU made me remember that joy. I am greatful for your experience in bringing him home.
Remember to take in all that you are learning about EB one day at a time. There is so much medical and care-information that viewing the disease and the responsibility it carries can become overwhelming. Joella has taught us to really appreciate every day as a gift from above. Isaih 26:3 states, "You will keep in perfect peace, he whose mind is steadfast, because his trust is in the Lord."
As you already have discovered, there are EB support groups which provide a wealth of intelligence, and please feel free to call upon us anytime as I know you have Katie's email and phone info.
You guys are doing a great job as Jameson's parents. All the best with your travels to and from Miami. Look forward to hearing about your experiences.
Todd & Melisa,
We can't tell you how overjoyed we are right now to see God's hand on your family! Literally sitting here just starring at the computer screen, at a loss for words. We are continuing to pray for healing. God is so good! Jamie and I love you bunches!
Kevin
Setsma Family, JT, May God place HIs healing Touch Upon Jameson. May God provide Comfort and Understanding for Mom and Dad.
JT, I had the pleasure of meeting your brothers last week at Basketball camp. They are loving and caring. They also have a great spirit upon them. Their prayers for you will always be heartfelt. My family is lifting your family up in daily prayers. We want to share a passage that helps us get through all the troubled times. Ish. 40:31 I will HOPE!
God Bless you and your Family
The Negrins
Melisa and Todd, I know you are glad this had is here! I hope your trip to Miami is quick and blister free. Please let me know how it goes and if there is anything I can help you with when you get home.
We are all thinking of you and praying for you continuously throughout the days. We are keeping in touch with your parents Melisa, and trying to encourage them. We check your blog frequently throughout the day. We are praying with thanksgiving and confidence that God is going to do something miraculous with Jameson's condition. Thanks for sharing his progress with us. We love you all. We look forward to hearing more good news. Be safe.
Love,
Dianne
It was so good to be able to read the progress of Jameson. I loved seeing the pictures of your precious baby. Melisa, he is beautiful. Wow! how much his brothers have grown and look like their parents. Please know that Chuck and I love and are praying for you and your family. I pray that this trip to Miami will bring only good things. I love you girl!
Give the boys a kiss for us.
Chuck and Tammy
I am an EB mom who lives in the Miami area (Ft. Lauderdale). If you would like to meet while you are down here, feel free to call me. Pam (954) 770-9560 There are also several other families in the area that would be happy to speak or meet with you. Good luck at your appt. tomorrow.
You are all covered in our prayers for Jameson's appointment tomorrow and we are praying expectantly for your strength and his healing!! We love you!
Bob and Amy
Jameson is so beautiful! We love seeing the pictures of all of you, as we check the blog daily for updates. Dylan and Bailey especially love the one with all three of their cousins together. We are happy to hear that prayers have been answered. We pray that your trip to Miami goes well and for complete healing for Jameson. Your Christian faith during this difficult time has been such an inspiration to me. I listened to the song, "Glory in the Highest",--AWESOME! I see why it has so much meaning to you. Ya'll are a wonderful example of Christian parents. Nicholas, Zachary and Jameson are blessed to have you.
Love,
Shawn
I think he looks like mom! It's so exciting to be able to say that. Good luck on Monday and all our love from Colorado.
Love, MO
Todd and Melissa,
We just wanted to let you know that we are thinking of you and praying for your trip to Miami with little Jameson.
The Ellis Family
Todd/Melisa - as your car pulled out for Miami, everything looked fine and hopefully the trip went well. Jameson even looked content in the car seat, although we all wished it was a little less confining.
Literally hundreds of us are praying that today's appointment will reveal some positive news regarding his condition and future care. We all love you and are not only praying diligently but also really admire you for your faith and unquestioning committment to the Lord at this difficult time. We Love You
John and I have recounted the day you told us Melisa that God had revealed it was time for another baby. We praise God for sweet little Jameson and continue to pray for healing and comfort. We pray for wisdom for the doctors and for you. We love you guys soooo much!!!
Oh..."circus of love" is the Evans family.
Kathryn
Todd, Melisa and boys,
It was great to see you in church yesterday. Taking time to worship with your church family says a lot about your faith and source of strength. We have been praying fervently for Jameson and your family. He is so precious! He is on my heart often, as are you, his family. The verse that keeps coming to me is Isaish 55:9, "As the heavens are higher than the earth, so are my ways higher than your ways and my thoughts than your thoughts." It's hard to understand why things happen, but we just have to trust that God's plan is the best one! I also like to think of little Jameson in Jesus' arms, as in Isaish 40:11, "He gathers the lambs in his arms and carries them close to his heart." I look forward to hearing about today's visit with the doctor in Miami. Keep the faith.
Love to all,
Kim Muller
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