Help! This dogs getting me.

Help! This dogs getting me.

Sunday, September 21, 2008

Just a little fussy

Well, I think you might know what that means (being fussy). Yes, I we are fighting ANOTHER infection. I had no idea how important our skin was, until I had a child that has open wounds all over his body. He is learning to like his daily bleach bath (2 gallons of water to 1 tsp. of bleach). It is like swimming in a pool, I have been told. We have this yellow inflatable ducky tub, his beak quacks, and I have an idea that Jameson is going to hate to hear "What does the ducky say!!!?" He doesn't mind the bath, he just hates having his bandages off. I was so scared of giving him a bath at first. I thought that I would hurt him..... so I called Sarah and she came over and gave him his first bath. (Thanks alot Sarah) I have gotten a little more confident with putting him in the bath but it still freaks me out. Please pray that the infection will heal and that he will not need to go to the hospital.

Jameson is becoming more aware of the things around him. When I am changing his bandages he will try to move my hand with his foot or fight me when I need to straighten his arm. He is so strong, both physically and strong-willed. I guess his strength is what has helped him through the first 10 weeks of his life. Can you believe he is 10 weeks old? Some days it feels like he has been around for an eternity, other days, it is just like yesterday that I was pregnant.

We did not go to church today, but we had church at home. The subject of faith came up. Zachary asked the question, "What is faith?". Todd told him that faith is believing and trusting in God even when we don't see Him. WOW! Can you imagine if a 5 year old can understand what faith is? I pray that our baby Jameson will teach our 5 and 7 year old boys (as well as myself) what faith is. I have such a faith in Jesus for saving me, but do I truly have the faith that He will heal my baby? Yes I do. Why? because He is faithful to do immeasurable more than I can ask or think!!!!! I love a faithful God who loves me and loves hearing me call out to Him. He loves that Jameson's life is teaching me and Todd and the boys who He is and how He works out everything for His good.


Sara said...

Melisa and Todd,

You know that you can call anytime you need help with a bath or dressings!

Being strong-willed is an EB thing I think. Sami is VERY strong-willed (as am i) sometimes that isn't a good thing, but I know it will help her get through life and all of it's ups and downs.

Just keep up with the bleach baths and changing the bandages with drainage frequently and I know you guys will beat this infection as well!

Take care.


P.S. For the friends and family of the Setsma's reading this, if you want to learn more about my family and I, how EB fit's in our lives, and how we came to know Melisa and Todd, feel free to check out my web site:

Andrea said...

You don't know me, but Todd's mother and my mom are in a prayer group of some sorts together. My mom passed on your website, and I have been praying for you all everytime I go on your site (which is probably daily). I wanted you to know that your testimony is reaching people and impacting people you don't even know. I can't imagine what you go through in a day, but to see you with such an honest and godly attitude is such a blessing to me every time I read your blog. God never makes a mistake, and little Jamison is perfectly made the way God intended him to be. I'm sure you've grown so much closer to our God now experiencing what he did.... watching his son suffer. You are amazing woman Melissa.... those boys (all 4) are blessed to have you in their lives!!!

Geri said...

Hi Melisa-
I was happy to see the Dx of EBS-DM.
Please let me know if there is anything you need from me.
Best regards,
Geri Kelly

erin and britt said...

A Setsma child strong willed? What a surprise! ha ha! Love you guys and so glad to get each update. Hadn't even thought about are brave parents! Talk to you soon, Erin and Britt

Chuck and Tammy said...

I had to laugh also about you having a strong willed child!!! Remember all those times your mom said, "I hope you have a child just like you"...I'm just saying.
Please know that we continue to lift your family up in our prayers.
We love you!!
Chuck and Tammy

Dial Family said...

I am praying for a quick recovery from this infection. I am pretty sure Jameson does not get his fiesty-ness from Todd!

Miss your sweet face. Monday mornings are not the same without you at the table. You are covered in prayer! I love you!

Dianne Snead said...

I thought of you all Sunday when the choir sang a song. It says something like..."It's time for a miracle. Let the devil be advised, God said it's time, time for revival, time for restoration, and old time salvation. It's time for a miracle." I believe in God and have faith that he will heal Jameson. I pray for you all daily, and the devil can just step aside, because when God says it's time for a miracle, it will be done. Thanking God for what He has done already and what He still is going to do. What a blessing you all have been to us. Your faith is amazing. Love, Dianne

Chuck and Tammy said...

I ran across this poem the other day and thought you are truly Jameson's angel...Love you, Tammy

Baby asked God, "They tell me you are sending me to earth tomorrow, but how am I going to live there being so small and helpless?"

"Your angel will be waiting for you and will take care of you."

The child further inquired, "But tell me, here in heaven I don't have to do anything but sing and smile to be happy."

God said, "Your angel will sing for you and will also smile for you. And you will feel your angel's love and be very happy."

Again the child asked, "And how am I going to be able to understand when people talk to me if I don't know the language?"

God said, "Your angel will tell you the most beautiful and sweet words you will ever hear, and with much patience and care, your angel will teach you how to speak."

"And what am I going to do when I want to talk to you?"

God said, "Your angel will place your hands together and will teach you how to pray."

"Who will protect me?"

God said, "Your angel will defend you even if it means risking it's life."

"But I will always be sad because I will not see you anymore."

God said, "Your angel will always talk to you about Me and will teach you the way to come back to Me, even though I will always be next to you."

At that moment there was much peace in Heaven, but voices from Earth could be heard and the child hurriedly asked, "God, if I am to leave now, please tell me my angel's name."

"You will simply call her, 'Mom.'"

psetsma said...

Jameson has stubborness on both sides of his family - for this we will pray. What I am grateful for is he is strong-willed.
Todd knew at an early age that he must be strong willed for Jesus to be the man God desired him to be. You can't go through school, sports, college and business and not be strong willed and live the life that he leads. I praise God that Todd and Melisa are strong willed for the Lord.
I pray daily that all seven of my grandchildren are stong willed for Jesus and serve Him. Thank You, Lord, for my precious husband, precious sons and their families. I love you all so much.