We are completely healed from the hernia surgery. Yesterday, we went to the Dr. and he took out the stitches. He was very pleased with Jameson's healing. We have truly had some of the BEST doctors taking care of Jameson. The Lord has truly taken the best care of our little boy!!!
Jameson is doing very well. This is the longest amount of time that we have been home without being sick. I pray that we have seen the last of hospitals and pullout beds in the hospital rooms. I am finally becoming a little more relaxed with the baby and his disease. The hardest times for me are not not knowing how to help him or how to console him. I am coming to know his many cries. He has a cry for being hungry,sleepy and the famous" just pick me up cry". The pick me up cry works really well on the Mimi's(grandma's). I am also learning about his EB cries.....he has those cries too. There will be times when he is just uncomfortable and he has a hurt cry. These cries hurt my heart and all I can do is pray for Jesus to comfort him. And then he has the cry "of leave me alone". Jameson, many times just does not want to be touched. I have learned that after bandage changes DO NOT TOUCH HIM!!! He has been touched for 2 hours and he will let you know that he is done. My favorite cry is the one that stops his crying when I say, "Mommy loves you". He knows that Jesus loves him, and I am just thankful that he is learning that I love him too.
I was reading just this week in Oswald Chambers about a river. He was saying that a river will have obstacles that will hinder its course. For a while the river will be blocked but soon it will find a way around the obstacle. Or the river will drop out of sight for miles and then emerge even greater than ever. The point in saying all of this is...there will always be obstacles or trials in life. The strength of the river is when it stays on the path set before it, not stopping or going on its own path. The river needs to stay close the its Source in order to find strength to either get around the obstacle or the Source will remove the obstacle. I pray that Todd and I never focus on the obstacles or the difficulties in life. I pray that we stay focused on the Source, because the Spirit of God will overcome All of our obstacles!!!
Please continue to pray for a miracle, God is still in the business of complete healing! Jameson's hands and feet are still really yucky. Please pray for the callouses to be healed and completely go away. These callouses hinder his flexibility and movement. Also, tell Jesus Thank you for us....Jameson has new skin growing on his ankles and he has a round pudgy face. He is gaining weight and getting bigger. I have had to adjust the size of his bandages many times in the last 3 weeks. PRAISE THE LORD!!!!!!!! OH yeah.... Pray for NO MORE BLISTERS!!!!!