Jameson smiled for the first time!!!! What a beautiful sight that was to see. He has such an amazing smile. I will try to catch his smile with a picture. I know that every parent thinks their child has the most beautiful smile well.....Jameson's HAS the most beautiful smile ever!!!!! His smile brings such a happiness to my heart like nothing else. Jesus knows how to pick me up and keep me going.
I am not sure if I have shared with you the condition of Jameson's hand and feet. I think that I asked you to pray for his movement and range of motion. Well, he has a condition called hyper-keritonosis (spelling not sure). This causes thick callouses on the palms of his hands and bottoms of his feet. This is one of the major problems with EB Simplex Dowling-Meara. Also, Jameson has the thickest finger and toe nails. They almost look like black caps on the tips of every nail. I tell you all of this because they have started to fall off and he has cute pink little fingers and toes. The skin does continue to blister around his fingers and toes, but just for a day his little toes and fingers look "normal". I have told some of my friends what a sense of humor God would have if He choose to make Jameson into a hand and foot model =). We were told that Jameson may have nerve damage to the tips of his fingers and toes. We feel that Jesus is showing his healing on Jameson by allowing those black tips to just fall off. We are very encouraged to see All that is taking place on Jameson's little body. Please continue to pray for no more blisters and complete healing. Right now he is getting a lot of new blisters on his back and stomach.
I know that in life we will encounter many things. I know that we are promised trails and pain....I also know that we are promised forgiveness, grace, mercy, and an everlasting love of the Father. I hold on to His promises daily, they get me through whatever this life has for me.