I often sit at the computer and pray,"Lord what would you have me say tonight?" I find myself struggling to tell you guys the truth because it is not the best of news and I am not a negative person. I want to tell you that the days are getting easier...but there not (right now). Everyday poses a new set of struggles. Today, I went to wound care with Jameson and his hands are in bad shape. They want us to see a hand specialist. Jameson has a lot of calcification on the tips of his fingers and the palm of his hands. This presents problems with his flexibility and movement. They are saying that it needs to be looked at because of the long term problems this may have with his development. I have been told by a friend and Eb mom that it will probably get worse before it gets better. This disease is so unpredictable and no two children are alike. Soooo...we are praying that the days are going to get better soon. We can only think about today and not tomorrow, because just thinking about 1 minute from now is overwhelming. Sorry about all of the heavy information. I cannot wait for the day that I will be telling you about him rolling over and his first steps. You are walking through the fire with us and I am so thankful for the walk. God never said that it would be easy, but He did promise to walk with us through the trials.
We have been advised to go to Cincinnati. Please pray that God would gives us wisdom in making this trip. I am fearful of taking him so far from home; when he is so young.