The days are getting a little easier. I am slowly learning Jameson's cries, his likes and dislikes. He is truly a great baby. I will never understand what it is like to be Jameson, but I do know that the hand of God is all over him. He will smile during his sleep and that just gives me such comfort knowing that he can rest peacefully. I am learning to love him in ways that only a mommy can. He touches my heart like no one else. I was having a bad day yesterday and I went to God with many question. Why? Why? Why? The Lord answered I will not know all of His secrets. In my devotions David Jeremiah said,"The secret things are God's determined, sovereign purpose. Our problem is wanting to know all God's secrets. But our responsibility is to take what God has revealed and work to understand it and implement it with all of our heart-and leave everything else to God". I do not need to know the why's(although my heart wants too) all I need to know is the ONE who is in control and trust in Him.
Jameson went to the hospital today for wound care. Once a week, he will go and the wound care specialists will take off the dead skin that I am unable to remove. This is a blessing because if the dead skin does not come off it will cause infection. I never knew what I was capable of doing until God gives you the strength to care for a child that cannot do the "normal" things in life..... such as produce skin. We are still having blisters daily and this concerns me but from my understanding this is common in EB babies. Our prayer is that the blisters will stop and his skin will continue to strengthen.
We are so encouraged by your comments and we cannot thank you enough for your prayers. We are finding joy in the mist of really hard times. And this can only happen because your prayers for us are being answered. Please tell Jesus thank you for answering your prayers and our!!! Please don't stop praying for us and baby Jameson.