Wow!!! That is an under statement. We came home from the hospital last night around 7:30. We were told that the blood they took on Friday was contaminated. From my understanding, all of the blood taken that day came back positive for bacteria. So.....we were able to leave the hospital taking 3 types of antibiotics. This is a good thing because we were going to be put on antibiotics anyway in order to have the hernia surgery. The surgery is going to take place early Thursday morning ,and we will be admitted into Arnold Palmer Hospital on Wednesday. I would be lying if I said I am not scared to have the surgery. There could be many complications that arise. We are praying for NO complications. I know that our Heavenly Father has gone before us MANY times before and HE will continue to do so. God says if we have the faith of a mustard seed we can move mountains....well, I want that much faith to move this mountain for our baby Jameson. He has overcome so many things. He is now a pound heavier, 2 weeks older and more cute :). He is one of God's many blessings in our lives.
I have changed my prayers many time through out this journey. My prayers have been ones of silences, anger, pain, and frustration. All the time, experiencing what it is truly like to have a personal relationship with Creator God. He gives us emotions and we have had many. At times, I have wondered is He a loving God? If He was a loving God ;then How could he have made it so clear for us to have this baby? His will WAS for us to have a healthy baby and somehow there was a MISTAKE(see this is where my frustration is). Someone prayed the day Jameson was born that this skin disease did not surprise God and what an amazing statement. God DID NOT MAKE A MISTAKE. He made a perfect little baby boy. Jameson has 10 fingers and 10 toes. He has beautiful lips and that I cannot stop kissing. He is loved by soooooooo many and most of all he is loved by Jesus. What I think Jameson is missing (his skin), is really a lie . Jameson has it all; he is loved by an amazing God that gave him everything he needs for life and godliness. What a wonderful life he has; he is right in the center of God's will. That is true PEACE!!!!
Love,
Melisa
Help! This dogs getting me.
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13 comments:
Oh I am so happy you are home and that he is gaining weight!! I am also glad the surgey will be over and done with soon and hopefull that will be your LAST hospital stay for a very long time! I was so scared and worried when Sami had her spinal surgeries and she came out just fine with hardly a scratch on her! I know Jameson will be the same!
so glad to hear all this! i heard you came by CEC today! super sad i missed you!
Oh, Melisa, you make me cry. I just thank God for your strong faith and your devotion to God and to your family.
We just had a prayer time here at work and my friend, Isabel, prayed a beautiful prayer for Jameson. She prayed for healing from his head to his toes.It made me cry some more.
We love you and pray for you all.
Aunt Lynn (Uncle Dave too)
Setsma family,
We are praying for Jameson's health and speedy recovery. We are also praying for your wonderful faith in our Lord, Jesus Christ and that you will continue to remain strong in him during this time of struggle and that he also gives you stength and patience to help Jameson overcome his illness. We know that with a strong faith in God, which you guys definitely have, anything is possible. Please be encouraged that there are people out there who care deeply and are praying for you. God Bless your family.
Michael and Christina Spencer
Hey guys. Glad you're back home. We'll be praying for tomorrow's surgery, I know you'll be glad to have that taken care of and behind you. Just wanted you to remind you how much we love all 5 of you! Erin
We are so happy to hear all the good things God is allowing in Jamesons life. We will pray without ceasing on Thursday that the doctors will be guided in their skills and wisdom through our Great Physician.We pray that God will continue to give you and Todd renewed strength daily. We love you,Glen and Debbie
Melisa & Todd~
I have been reading your blog and have you guys on my mind all the time! Thanks to Sara who's been keeping me on top of everything that lil'Jameson and y'all are going through! Bianca started school and I haven't had much "quality" time to catch up on what's been happening out there...I do, however, continue to pray for you all every night and silently say a prayer whenever Jameson comes into my mind.
When Bianca was born we had a chaplain from my old office come visit us at the hospital and he made an almost similar statement about Bianca not being a surprise to God. He said "Lord you knew how she was coming into this world and you blessed her with the right family. We know she wasn't a surprise to you so we ask that you give this family the strength they need to take care of their beautiful baby girl". When he said that prayer and he mentioned how HE KNEW how she was from the beginning a light switch just went off in my head. After that point I just came to terms ~ not 100% at first ~ that we’re all here to walk a certain path, and even though we pause to ask why, we just need to make sure we continue down that path. I always say it’s not easy but it sure is gratifying! And honestly not many out there can say “I KNOW what it is to be GRATEFUL”. Actually many people can say it but only a few can FEEL it. I know with Bianca she’s made me so grateful of even the smallest things that I’m a better person today because of what she has to endure every day ~ yet at the end of the day always have a beautiful smile on her little face!
Gotta go I’m about to start crying!
Love you guys and hope things go well tomorrow! I’m sure they will…
Always in our thoughts and in our prayers
~Sally Contreras
Melisa, Sweet little Jameson and your whole family has constantly been on my mind since I saw and talked to you.Your faith is already being used in such an amazing way to strengthen and bless so many people. When the weight begins to get too heavy remember..."He will not give you more than you can handle." I love you all! You will be in my constant prayers tomorrow. Thank you for how your faith has blessed me. Love Always, Ms. Melinda (Special hugs to Zachary)
Melisa and Todd...you guys amaze me with your strength and trust. We know all the "bible answers" but you are living your faith out loud! God is so good and you are right, He has not made any mistakes. He formed Jameson in your womb just the way He wanted him.
I love you,
Karen Toenges
I think people are born with EB for a reason; that their purpose in life some how relates to having it. I will tell you it's taken me almost my entire life to figure out why I was born with EB, but I am starting to see why and in reality you guys have helped with that by allowing me to come into your lives and help you get throught this trying time...good luck tomorrow. we'll be thinking of you all day and checking for updates often!
I am spreading the word and We will be praying all day today. God is so evident and so real. I pray you feel his presence all day today.
love you
melanie and mike
My thoughts and prayers are with you today as you go through this stressful experience.
I also have EB (RDEB). Please feel free to contact me should you need anything. I am not far from you (St Augustine).
I am so glad that you found Sara, she is wonderful and full of EB information and happening!
Please post an update as soon as you can - and I just know that everything will go well today!
Janel
Melisa and Todd,
We just wanted to let you know that we will be praying without ceasing today for Jameson and both of you. We pray that the surgery goes well and that God will give you both what you need when you need it...because HE knows all.
My mom and dad send their love and prayers.
We love all of you,
Chuck and Tammy
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